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The long-term prognosis for someone with cystic fibrosis varies greatly from person to person. Genetic mutations, modifier genes, environmental factors, and, to some degree, luck can all influence the progression of the disease. Many people with cystic fibrosis live into their 20s, 30s, and beyond but there are some that do not. There are exciting new drug therapies in the pipeline that have the ability to change cystic fibrosis from a life-shortening disease to a completely manageable disease. For instance, the drug Kalydeco is considered a functional cure for a certain subset of the CF population.

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11y ago
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12y ago

Basically, you're ill all the time, medication all day, everyday and you will get a lot of hospitalizations. We die earlier than most people, but everyone dies anyway.

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Q: What is the long term prognosis for a cystic fibrosis sufferer?
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