It is usually pritty easily for those who are lucky and don't have it to bad except for all the treatments and medications. Most go around like normal unitl they have trouble breathing and then it feels like your lungs are filling with liquid and your body is drowing it's self. My boyfruend has CF so this information is coming directly from someoe who has it.
Hi my name is Cassandra,
I am eleven years old and I have Cystic Fibrosis. My normal day is...
Wake up do mask (treatment)
Go to school
come home
do homework
Do mask again
Do huffing ( to loosen my mucus)
Everyday of my life I take about 25-30 pills a day. I take medican whenever i eat.
For a snack I take 3 pills. For a main meal I take 4 pills. I take this pills with any kind of liquid. My breathing is like you breathing through a straw. Its not easy for me to breath. I visit the hospital every 12 weeks for a check up.
Thank You
Hello, I'm Keely.
I am nearly 14 and I also have CF. My day is a lot more than Cassandra's.
I wake up and take a nebulizer called Ventolin (approx. 10 mins)
I then do the mask.
I then do the vest (look it up on YouTube) (exact. 20 mins)
I go get dressed and whatever
I get Tobramycin (neb.,approx. 20 mins) or Colomycin (neb.,approx. 5 mins.)
I go to school or shopping or whatver!
I come home and do pulozine (neb., approx. 15 mins)
Then I start the whole morning thing again and then go to bed!
I go to the hospital around every 2 months and stay in maybe 2 a week for 2 weeks at a go.
What is cystic fibrosis? Cystic fibrosis is a life threatening disease.
Cystic fibrosis has no cure. However, treatments have greatly improved in recent years. Early treatment for cystic fibrosis can improve both quality of life and lifespan.
The average life expectancy is about 30, but it varies.
£130,000
The person who has Cystic Fibrosis has it for life.
Go to a doctor
I am an independent life insurance agent. We recently lost my best friends wife to cystic fibrosis. I have done much research and have found one company that will insure someone with cystic fibrosis. All of the information is on a website I have created. life4cf.com Thanks, Chris Duncan
Cystic fibrosis currently does not have any sort of cure. Treatment is mainly done to reduce symptoms and complications. Treatment options include antibiotics, mucus-thinning drugs, and oral pancreas enzymes.
The long-term prognosis for someone with cystic fibrosis varies greatly from person to person. Genetic mutations, modifier genes, environmental factors, and, to some degree, luck can all influence the progression of the disease. Many people with cystic fibrosis live into their 20s, 30s, and beyond but there are some that do not. There are exciting new drug therapies in the pipeline that have the ability to change cystic fibrosis from a life-shortening disease to a completely manageable disease. For instance, the drug Kalydeco is considered a functional cure for a certain subset of the CF population.
Most people who have this disease die around 35 .
Cystic Fibrosis is a life threatening genetic disorder. More children are living into adulthood with better treatment options. The death rate is 100 percent, when the lungs and pancreas quit functioning.
According to the Cystic Fibrosis Trust's website:Cystic Fibrosis (CF) is one of the UK's most common life-threatening inherited diseases.Cystic Fibrosis affects over 9,000 people in the UK.Over two million people in the UK carry the faulty gene that causes Cystic Fibrosis - around 1 in 25 of the population.If two carriers have a child, the baby has a 1 in 4 chance of having Cystic Fibrosis.Cystic Fibrosis affects the internal organs, especially the lungs and digestive system, by clogging them with thick sticky mucus. This makes it hard to breathe and digest food.Each week, five babies are born with Cystic Fibrosis.